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Offline Resources
Jan 27, 2014

http://storify.com/DrAttai/offline-resources-1/preview” target=”_blank” data-timestamp=”2014-01-28T03:45:35.671Z” class=”s-published-date timestamp”>Mon, Jan 27 2014 19:45:35

Offline Resources

We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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I’m alicia – 3x cancer survivor (hodgkin’s and BC) & co-moderator of #BCSM with @jodyms and @DrAttai

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: In the age of social media – it’s easy to forget the “offline” resources that are available to us as we move through a cancer DX #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: What was one “offline” resource you turned to while going through treatment/recovery? A book? a class? a support group? #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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In 1995, susan loves Breast book was it. Also “full Catastrophe Living” by Jon kabat zinn (mindfulness) was a big help. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: It wasn’t unusual for someone to quote from Susan Love’s book. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1 No social media when I was diagnosed, too. Walked into Gilda’s Club, and they took good care of me. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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A1: no social media when I was first disgnosed with hodgkin’s in ’91 — I spent lots of time in the library & books w/paper #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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@DrAttai the book that helped the most was Untethered Soul. Nothing to do with cancer tho. 🙂 #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: Turned to two friends who were going through tx a bit ahead of me. No interest in support groups. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T.1 friends who had gone through it and the hospital where I was treated – good resources #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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A1: My two favorites were books: “Prepare for Surgery, Heal Faster” and “Cancer as a Turning Point” #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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A1: I was too overwhelmed to do a lot of reading. My docs turned out to be my heroes. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: Oncologists were great but my chemo nurse was the bomb! Can’t imagine having done this w/o her. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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@DrBeckerSchutte Yes, therapy. Still trying to sort out the shitstorm that is cancer. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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#bcsm also had a friend yoga teach me at home. Very helpful to help with stress during treatment.

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: Kind ppl who were getting chemo with me, and their families made me comfortable. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1: Acupuncture helped…my chiropractor was informed in diet and lifestyle changes and helped a lot. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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A1. Also physical therapy helped, mentally felt good to get a little continued care for scar treatment, pain, etc. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1 recap: Offline resources you turned to: books, particularly Dr. Susan Love’s book, friends and other survivors, yoga, THERAPY… #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1 recap: Massage, acupuncture, other relaxation exercises.. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1 recap: Many of you found strength and support from your doctors, chemo nurses, and other members of your healthcare team! #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T1 recap: Many of you participated in “Look Good, Feel Better” – another great program #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T2: Many hospitals offer programs to help cancer survivors like writing classes, art Therapy. Were you offered anything like that? #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T2: Wasn’t aware of such programs at hospital, but Gilda’s Club offered plenty. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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A2 Not everyone has geographical access to good facilities. Hopefully the internet can bridge that gap. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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more academic and community cancer centers are offering supportive services, therapy, acupuncture, yoga, etc – ask around! #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T2 recap: Many of you attended lectures, exercise classes. Some even attended writing classes! Very cool! #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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I also got a cat, which helped more than one can imagine. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T2: My beagle mix was the best therapy combined with long nature walks all through tx. She never left my side when recovering. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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#bcsm yes! nutrition is key!! never found great support in hospital setting. my sister is an RD and I talk to other mets pts for tips.

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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t2 recap: Everyone dealing with cancer should get a pet dog, cat, fish, hampster, zebra, insert pet type here…. PRONTO #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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#bcsm. Nutrition counseling for those struggling with needing more weight very diff from those wanting info on quality dietary changes.

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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@bcwarrior40 I think that is too often true. People need solid nutritional/diatetic support, not fad theories. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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Re:nutrition, found Cancer Fighting Kitchen a great resource rec by another BC patient #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T3: If you had to help a newly diagnosed cancer patient – what’s one OFFLINE resource you’d want them to have in their tool kit. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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@stales the day after I was diagnosed my best friend bought me a beautiful journal and a new pen. Essential resource for me. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T3: pick one: therapy, massage, acupuncture #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T3: Seek out a therapist if you need to. A great therapist can help. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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I would want to give a newly diagnosed pal a prepaid card for meals to be delivered from her fav restaurant, available on tap #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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@stales Yes I tired it all! And when I couldn’t find a #breastcancer support group that I preferred, I started my own. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T3 recap: Gift cards, books, nice pen, new journal, chocolate, THERAPIST, massage gift card, pillows, — great ideas! #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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T3 recap: meal services, cleaning services, lots of helping hands, meal train — great ideas! #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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The best offline resource was me. I sought out help during my hell. I overcame my shyness to reach out. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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Cancer is isolating. Seek out ways to lessen isolation: mentors, support groups, writing, pet zebras, etc. #BCSM

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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Last thought: support by being there, offering help, and provide a solid dose of humor. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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Good night Tweeps! Thanks for another great chat. #bcsm

 

    • We’re all now used to using the internet for instant access to education, advice, and support. But tonight the #BCSM community discussed the “IRL” supports – books, support groups, friends, pets, food, and more…

 

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You all rock. Thanks for making my Monday something really special. #bcsm

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