By: DrAttai
Mar 24, 2014
-
Alright! it’s 9 pm! Are you ready for the chat? #bcsm
-
Tonight we’re talking about disparities in breast cancer care. #bcsm
-
The difference in mortality rates between black women and white women with breast cancer has widened since 1975 http://ow.ly/uVt88 #bcsm
-
Think about this: black women with breast cancer are on average 40 percent more likely to die than their white counterparts. #bcsm
-
Source: black women have not benefited as much from improvements in screening and treatment http://ow.ly/uVt88 #bcsm
-
I had no clue that the racial disparities were so great. #BCSM
-
End of the day – no clear answer why disparities so great. Tumor biology, patient genetics, access to care, awareness – and more #bcsm
-
-
A1 start to raise awareness is to acknowledge that this is a problem #bcsm
-
Q1. We do what we started doing (& continue to build on) for Metastatic Breast Cancer. We shed light & raise REAL awareness + action #bcsm
-
A1: Confronting the unequal access and opening up pathways to care. #bcsm
-
-
-
A1: Advocate for policies & legislation that support early education & patient notification 4 screenings, treatment and care. #bcsm
-
Q1a: What are the cultural complexities that account for this widening gap? Are the pink ribbon campaigns to blame? #bcsm
-
BINGO MT @JulieGoodale: A1 When people complain about too much awareness campaigns – Awareness is not equally shared!
#bcsm -
Breast cancer isn’t black, white, or pink. Need equal awareness for all out there, and equal resources for those in need. #bcsm
-
We’ve wasted too much time working on pink when the issues are really in front of us: research and education that’s multicultural. #bcsm
-
-
-
-
Q2: Start local circulation of materials & messages among Black women’s organizations 2 broaden reach & engage awareness w/education. #bcsm
-
Until better treatment options are available many will avoid or delay – that’s not access or education issue #bcsm
-
@garmischgirl however outcomes can still improve if everyone has access to (& good info to decide to accept) current treatments. #bcsm
-
RESEARCH RT @garmischgirl: Until better treatment options are available many will avoid or delay – that’s not access / education issue #bcsm
-
Research is so much more important, and necessary, than people realize. Can’t answer questions if they’re not being asked. #bcsm
-
-
@jodyms @itsthebunk Possibly partner with Sisters Network or Cancer Support Community’s research arm and BC registry?#BCSM @CancerSupportCm
-
Irony of talking about racial disparities — when recognizing that every community needs more focus on diversity and access #bcsm
-
Talking about disparities actually involves listening outside of our own culture. #bcsm
-
Anyone else see two cancer divides in the breast cancer community? 1) racial disparities and 2) stage of disease #bcsm
-
Much harder than we realized, isn’t it? So… What’s the next step forward? #bcsm
-
Methinks it’s time to for many of us @ #BCSM to reach out to black twitter w the facts re racial disparities & what poc need to know
-
A2 There are also cultural issues and mores. Certain topics (including BC) are still cloaked in secrecy. #bcsm
-
This is a great org in Boston (“because BC comes in colors other than pink”) http://www.bphc.org/workingwithus/community-partnerships/pink-and-black-campaign/Pages/Pink-and-Black-Campaign.aspx … #bcsm
-
I run a IBC support group, over 300 + wm. the wm of color ie black, do not post. just the white. how to engage? #bcsm
-
if I write them one on one, they answer but will not share in group. #bcsm
-
Also realize not all enjoy online platform – need to get creative on how to reach those not here #bcsm
-
-
-
-
#BCSM will continue to peel back these layers and determine how we can help.
-
Anyone got a fact sheet or willing to put one together? I’d be happy to work on twitterverse outreach #bcsm
-
Q3: Pick any aspect of the disparities we’ve briefly reviewed tonight — how would you tackle it? #bcsm
-
-
@stales @itsthebunk And we must remembr interactions of race, glass, gender in creating a msg tht attrcts wide range #bcsm
-
If we get representative women of color wkg key issues, I think it encourages others to become involved #bcsm
-
I can certainly raise the issue on METAvivor Facebook page and request ideas #bcsm
-
@stales @itsthebunk Me 2! Especially 4 those who may b in Los Angeles area. Want 2 host roundtabl discussion with Dr & thought leaders #bcsm
-
@CarrotsandKale #bcsm any outreach to Sister’s Network? African American BC survivors group? If not I can try to make a connection
-
@yayayarndiva thx,going to reach out re #bcsm to some of AA support groups here in LA, and ask colleagues in TX, DC &ATL to do the same
-
So far – we’ll have an LA roundtable… I’ll cover Boston! #bcsm
-
Very excited to see ideas turn into action so quickly tonight! #bcsm
-
What if we each take one action this wk to gather info or initiate something or even just ask questions .. then report back next wk. #bcsm
-
-
-
I couldn’t help notice that we were missing black BC sisters in tonite’s chat. We need to hear their voices, too. Let’s change it. #bcsm
-
But tonight’s chat was a great start. It’s got me thinking. Thanks everyone! I always love being here. #bcsm
storify.com
Respond