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Cancer Survivorship and Social Media

You have been asked to participate in this survey that is designed to answer several questions. There is a relative lack of information on the extent of involvement of cancer survivors in online support groups, chat rooms, and journal clubs, and a lack of information on the frequency with which survivors receive information after cancer treatment – a survivorship care plan, and the amount of information they receive. Our goals are to fill the gaps of knowledge in those areas. The survey should take less then ten minutes to complete and is open to anyone who has been or is being treated for cancer.

Completing this survey is voluntary. By completing the survey you are implying consent to participate in this research. Once you have submitted the survey and the responses are recorded, you will not be able to rescind your participation because the surveys are anonymous and as such, are untraceable. The researchers will never know your name or location. Your identity or location will not be known.

As the study’s principal investigator, please feel free to contact me directly with any questions you may have about the survey – Dr. Diane Radford: radford2@ccf.org or 216-444-7506.

If you have questions about your rights as a research participant, please contact Thomas Harter, Ph.D., Chair of the Gundersen Clinic, Ltd. Human Subjects Committee/IRB at 608-782-7300 or 1-800-362-9567. An IRB is a group of health care professionals and community members who review research studies to protect the rights and welfare of research participants.

Thank you for your time. Your participation in this project is greatly appreciated.

This survey was approved by the Gundersen Health System (La Crosse, Wisconsin) Institutional Review Board (IRB).

Click here to access the survey.

Comments

BCSMChat

Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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dianeradfordmd

Date: 21 Mar, 2016

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KadrinWilfong

Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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Date: 21 Mar, 2016

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mtmdphd

Date: 21 Mar, 2016

Cancer Survivorship & Social Media [3/21/16] HT @DrAttai https://t.co/gPqXekxo2S #bcsm

Debra Snipes-Stephens

Date: 21 Mar, 2016

I found that blogs about cancer are often full of negativity and bad I formation. But when I was first diagnosed I knew next to nothing about breast cancer. I fortunately was referred to a doctor who wrote a book about treatment and was told I should read it. But there needs to be a followup book or literature discussing what to expect after treatment. Not all doctors fully advise their patients about what to expect before or after treatment.

knit1pug2

Date: 21 Mar, 2016

hello everyone, finally able to join for a bit.

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