You have been asked to participate in this survey that is designed to answer several questions. There is a relative lack of information on the extent of involvement of cancer survivors in online support groups, chat rooms, and journal clubs, and a lack of information on the frequency with which survivors receive information after cancer treatment – a survivorship care plan, and the amount of information they receive. Our goals are to fill the gaps of knowledge in those areas. The survey should take less then ten minutes to complete and is open to anyone who has been or is being treated for cancer.
Completing this survey is voluntary. By completing the survey you are implying consent to participate in this research. Once you have submitted the survey and the responses are recorded, you will not be able to rescind your participation because the surveys are anonymous and as such, are untraceable. The researchers will never know your name or location. Your identity or location will not be known.
As the study’s principal investigator, please feel free to contact me directly with any questions you may have about the survey – Dr. Diane Radford: firstname.lastname@example.org or 216-444-7506.
If you have questions about your rights as a research participant, please contact Thomas Harter, Ph.D., Chair of the Gundersen Clinic, Ltd. Human Subjects Committee/IRB at 608-782-7300 or 1-800-362-9567. An IRB is a group of health care professionals and community members who review research studies to protect the rights and welfare of research participants.
Thank you for your time. Your participation in this project is greatly appreciated.
This survey was approved by the Gundersen Health System (La Crosse, Wisconsin) Institutional Review Board (IRB).
Click here to access the survey.