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Metastatic Breast Cancer – Awareness and Beyond

Guest Post by Darryle Pollack 

This week’s #BCSM Twitter chat will focus on metastatic breast cancer and what our community can do to help raise awareness about the reality of the disease and the ways it is swept under the carpet.

It might seem unusual for me to be one of the leaders behind this chat since I don’t have metastatic cancer. I am fortunate to be a 20 year survivor of Stage III breast cancer.  The longer I survive, the more I feel the need to see change happen , and to do more personally to make it happen.  I think as non-metastatic survivors we must be the leaders in support of our sisters; to take on the responsibilities of creating change they would like to see. The millions of breast cancer survivors alive today can play a key role in shaping how people feel about this disease – we can change perceptions and preconceived notions.

We’re long overdue to recognize the reality of metastatic cancer as a public part of the conversation. The public has become more sophisticated about cancer in general, and #BCSM as a community has proven its muscle; we have the potential to shift awareness in a new direction.  Clearly where we can help is specific awareness of MBC. We have promoted MBCN’s #Stage4NeedsMore and METAvivor’s #DontIgnoreStage4.  Yet as October approaches, we have not moved beyond chats to set for the steps required to accomplish this as a community; or even reached agreement on the hashtag.

So I hope everyone interested in breast cancer will join this twitter chat Monday August 31, to add your voice, ideas and support, and for us to collaborate on strategy and a plan to move forward together. Awareness and action are needed.

T1: Let’s start by asking those with #MBC – #metastatic #breastcancer – how they feel the message needs to change.

T2: For everyone – what ideas do you have that will allow us to quickly mobilize and change the messaging?

T3: Can we get this done by October? It’s just 30 days away!

T4: How can each of us individually leverage our personal contacts and outlets around this message?

T4: What is the best way to convey this message to the public?

8/31/15 Tweet Chat Transcript

head shot kim 5 smaller sizeDarryle Pollack is an author, mosaic artist, and a 20 year survivor of stage III breast cancer.  “I Never Signed Up for this….” is the title of her blog, TEDx talk and upcoming book. Follow her on Twitter: @DarryleP.

 

Comments

BCSMChat

Date: 31 Aug, 2015

Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

MBC_Project

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

NancysPoint

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

lgotl1230

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

Quirky47

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

rethinktweet

Date: 31 Aug, 2015

Tonight's #bcsm chat will focus on #metastatic breast cancer. Join the conversation starting at 9PM ET http://t.co/8QIFN70Mlq #metsmonday

Dr_Dana

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

TryDrinkPink

Date: 31 Aug, 2015

RT @rethinktweet: Tonight's #bcsm chat will focus on #metastatic breast cancer. Join the conversation starting at 9PM ET http://t.co/8QIFN7…

annmarieg4

Date: 31 Aug, 2015

RT @rethinktweet: Tonight's #bcsm chat will focus on #metastatic breast cancer. Join the conversation starting at 9PM ET http://t.co/8QIFN7…

BC_Consortium

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

fredhutch

Date: 31 Aug, 2015

Twitter chat today: Can those w/ #metastatic #breastcancer reshape preconceived notions of the disease? http://t.co/nMvs8ACH51 #metsmonday

CultPerfectMoms

Date: 31 Aug, 2015

Tonight's #bcsm chat is about #metsmonday be there or be square! http://t.co/XhmmpQKoYg

Prof_Anil_Jain

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

DarryleP

Date: 31 Aug, 2015

RT @CultPerfectMoms: Tonight's #bcsm chat is about #metsmonday be there or be square! http://t.co/XhmmpQKoYg

MyFreeCancerapp

Date: 31 Aug, 2015

RT @fredhutch: Twitter chat today: Can those w/ #metastatic #breastcancer reshape preconceived notions of the disease? http://t.co/nMvs8ACH…

MyFreeCancerapp

Date: 31 Aug, 2015

Retweeted Fred Hutch (@fredhutch): Twitter chat today: Can those w/ #metastatic #breastcancer reshape... http://t.co/gZnqYRQ9Ss

AmazzoneFuriosa

Date: 31 Aug, 2015

RT @CultPerfectMoms: Tonight's #bcsm chat is about #metsmonday be there or be square! http://t.co/XhmmpQKoYg

MHBTmovie

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

a4breastcancer

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

Elissa_Malcohn

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

Carol A Miele

Date: 31 Aug, 2015

Stage 4 Lives Matter!

ABHuret

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

SarcasmaDawg

Date: 31 Aug, 2015

RT @CultPerfectMoms: Tonight's #bcsm chat is about #metsmonday be there or be square! http://t.co/XhmmpQKoYg

DrAttai

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

polancodecouet

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

stales

Date: 31 Aug, 2015

31 Facts about MBC - post them here: http://t.co/DKk7K72R5V #bcsm

stales

Date: 31 Aug, 2015

Questions about MBC and messaging - post them here: http://t.co/DKk7K72R5V #bcsm

JCampisano

Date: 31 Aug, 2015

RT @stales: 31 Facts about MBC - post them here: http://t.co/DKk7K72R5V #bcsm

JCampisano

Date: 31 Aug, 2015

RT @stales: Hashtag ideas? post them here: http://t.co/DKk7K72R5V #bcsm

stales

Date: 31 Aug, 2015

Need a fact check ? post it here: http://t.co/DKk7K72R5V #bcsm

doctorkarpoff

Date: 31 Aug, 2015

RT @stales: Need a fact check ? post it here: http://t.co/DKk7K72R5V #bcsm

lauriek

Date: 31 Aug, 2015

RT @stales: Need a fact check ? post it here: http://t.co/DKk7K72R5V #bcsm

CultPerfectMoms

Date: 31 Aug, 2015

RT @stales: Hashtag ideas? post them here: http://t.co/DKk7K72R5V #bcsm

DrAttai

Date: 31 Aug, 2015

Good night everyone! Keep the convo going - post ideas here http://t.co/vC5ahOOcZs #bcsm

crgonzalez

Date: 31 Aug, 2015

RT @DrAttai: Good night everyone! Keep the convo going - post ideas here http://t.co/vC5ahOOcZs #bcsm

JamieD_daniel

Date: 31 Aug, 2015

RT @DrAttai: Here's the blog post - open for comments! http://t.co/vC5ahOOcZs #bcsm https://t.co/JO1Jug3mit

DrAttai

Date: 31 Aug, 2015

Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

AmazzoneFuriosa

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

MBC_Project

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

DarryleP

Date: 31 Aug, 2015

Thanks to all who participated in #bcsm chat. See transcript and add ur name in comments or I'll track u down! http://t.co/HOmlRwFDFf

GoBrooklyn

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

gcleslieb

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

myurologydoc

Date: 31 Aug, 2015

Top story: Metastatic Breast Cancer - Moving Beyond Awareness http://t.co/0bycJ8zjW2, see more http://t.co/IArAQ9zFgh

joan848

Date: 31 Aug, 2015

Metastatic Breast Cancer – Awareness and Beyond http://t.co/ennd3zhjOW

YourMindCanHeal

Date: 31 Aug, 2015

Top story: Metastatic Breast Cancer - Moving Beyond Awareness http://t.co/Td3RcS3IEU, see more http://t.co/vXnuH4zY0L

jandemommy

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

BRCAUmbrella

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

BCSMChat

Date: 31 Aug, 2015

Did you catch last night's #BCSM chat with @DarryleP? Check out her blog post and the Tweet Chat transcript here. http://t.co/WM3kE83o4h

SurvivorRunner

Date: 31 Aug, 2015

RT @BCSMChat: Did you catch last night's #BCSM chat with @DarryleP? Check out her blog post and the Tweet Chat transcript here. http://t.co…

phanmale

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

Jen Campisano

Date: 31 Aug, 2015

Re the 31 days of October, MBCN has a list: http://mbcn.org/developing-awareness/category/mbc-fact-a-day-31-days-of-october

BCSMChat

Date: 31 Aug, 2015

Last night's #BCSM blog post and transcript - keep the convo going! Post your ideas and action items in the comments http://t.co/427xtk5DyH

quietriot10

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

thecancergeek

Date: 31 Aug, 2015

@deedeesmiles4u http://t.co/ZzUFD1Wx5H

nic_mclean

Date: 31 Aug, 2015

RT @BCSMChat: Last night's #BCSM blog post and transcript - keep the convo going! Post your ideas and action items in the comments http://t…

vjsa68

Date: 31 Aug, 2015

RT @BCSMChat: Tonight's #BCSM Chat - Metastatic Breast Cancer - Awareness and Beyond http://t.co/427xtkneXh 9pm ET

Carmen Gonzalez

Date: 31 Aug, 2015

#HaveYouMETcancer

MyFabBoobies

Date: 31 Aug, 2015

RT @BCSMChat: Last night's #BCSM blog post and transcript - keep the convo going! Post your ideas and action items in the comments http://t…

SymphonySister

Date: 31 Aug, 2015

RT @DrAttai: Updated #BCSM blog post - Metastatic Breast Cancer - Awareness And Beyond - with transcript http://t.co/vC5ahOOcZs

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